Lupus Resources - Web Sites
The following Web sites can help you find additional sources of information about lupus: HealthFinder. The DHHS site for consumer health information. www.HealthFinder.gov.
Combined Health Information Database. The NIH and the Centers for Disease Control and Prevention database of sources for consumer health information: chid.nih.gov
S.L.E. Lupus Foundation, 330 Seventh Avenue, Suite 1701, New York, NY 10001, 212-685-4118, www.LupusNY.org
Lupus Research Institute, 330 Seventh Avenue, Suite 1701, New York, NY 10001, 212-812-9881, www.LupusResearchInstitute.org
National Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse (AMS Information Clearinghouse), Box AMS, 9000 Rockville Pike, Bethesda, Maryland, 20892, 301-495-4484. Resource services for rheumatic disease information including lupus. www.niams.nih.gov
National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK). National Diabetes Information Clearinghouse (NDIC), 1 Information Way, Bethesda, MD 20892–3560. Phone: 301–654–3327 or 800–860–8747 (free of charge). E-mail: ndic@info.niddk.nih.gov. Website: www.niddk.nih.gov
National Institute of Neurological Disorders and Stroke. Office of Communication and Public Liaison, P.O. Box 5801, Bethesda, MD 20824. Phone: 301–496–5751 or 800–352–9424 (free of charge). E-mail: braininfo@ninds.nih.gov. website: www.ninds.nih.gov.
Fibromyalgia Network, PO Box 31750, Tucson, AZ 85751-1750, Tel: 800-853-2929. Supports research through the American Fibromyalgia Syndrome Association. Website: www.fmnetnews.com
Scleroderma Foundation, 89 Newbury St., Danvers, MA 01923, Tel: 978-750-4499. Website: www.scleroderma.com
Sjogren's Syndrome Foundation, 335 No. Broadway, Jericho, NY 11753, Tel: 516-933-6365 or 800-395-6772. Website: www.sjogrens.com
Combined Health Information Database. The NIH and the Centers for Disease Control and Prevention database of sources for consumer health information: chid.nih.gov
S.L.E. Lupus Foundation, 330 Seventh Avenue, Suite 1701, New York, NY 10001, 212-685-4118, www.LupusNY.org
Lupus Research Institute, 330 Seventh Avenue, Suite 1701, New York, NY 10001, 212-812-9881, www.LupusResearchInstitute.org
National Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse (AMS Information Clearinghouse), Box AMS, 9000 Rockville Pike, Bethesda, Maryland, 20892, 301-495-4484. Resource services for rheumatic disease information including lupus. www.niams.nih.gov
National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK). National Diabetes Information Clearinghouse (NDIC), 1 Information Way, Bethesda, MD 20892–3560. Phone: 301–654–3327 or 800–860–8747 (free of charge). E-mail: ndic@info.niddk.nih.gov. Website: www.niddk.nih.gov
National Institute of Neurological Disorders and Stroke. Office of Communication and Public Liaison, P.O. Box 5801, Bethesda, MD 20824. Phone: 301–496–5751 or 800–352–9424 (free of charge). E-mail: braininfo@ninds.nih.gov. website: www.ninds.nih.gov.
Fibromyalgia Network, PO Box 31750, Tucson, AZ 85751-1750, Tel: 800-853-2929. Supports research through the American Fibromyalgia Syndrome Association. Website: www.fmnetnews.com
Scleroderma Foundation, 89 Newbury St., Danvers, MA 01923, Tel: 978-750-4499. Website: www.scleroderma.com
Sjogren's Syndrome Foundation, 335 No. Broadway, Jericho, NY 11753, Tel: 516-933-6365 or 800-395-6772. Website: www.sjogrens.com
Arthritis Foundation, 1300 West Peachtree St., Atlanta, GA 30309-2904, 404-872-7100 or 800-2837800. There are 72 American chapters which provide research monies, publish literature, and provide patient support. The organization spends about $3 million a year on Lupus research.
Website: www.arthritis.org
American College of Rheumatology. 1800 Century Place, Suite 250, Atlanta, GA 30345. 404-633-3777
Website: www.rheumatology.org
National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) Information Clearinghouse
National Institutes of Health. 1 AMS Circle, Bethesda, MD 20892-3675, Phone: 301-495-4484, Toll-free: 877-22-NIAMS (226-4267) TTY: 301–565–2966, Fax: 301-718-6366. NIAMS, the primary NIH organization for research on lupus, has a major focus on lupus research in its on-campus program in Bethesda, Md. NIAMS also funds lupus researchers across the nation, including a Specialized Center of Research at the University of Virginia School of Medicine in Charlottesville devoted specifically to lupus research
Email: NIAMSinfo@mail.nih.gov
Website: www.niams.nih.gov
American Autoimmune Related Diseases Association, Inc., (ADA) The ADA is a national nonprofit voluntary health organization dedicated to bringing a national focus to autoimmunity as a category of disease and promoting collaborative research efforts in order to find better treatments and a cure for all autoimmune diseases.
Website: www.aarda.org
Could I Have Lupus. Could I Have Lupus is a campaign created by The National Women's Health Information Center (NWHIC), a service of the Office on Women's Health (OWH) in the US Department of Health and Human Services (HHS).
Website: www.couldihavelupus.gov
Website: www.arthritis.org
American College of Rheumatology. 1800 Century Place, Suite 250, Atlanta, GA 30345. 404-633-3777
Website: www.rheumatology.org
National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) Information Clearinghouse
National Institutes of Health. 1 AMS Circle, Bethesda, MD 20892-3675, Phone: 301-495-4484, Toll-free: 877-22-NIAMS (226-4267) TTY: 301–565–2966, Fax: 301-718-6366. NIAMS, the primary NIH organization for research on lupus, has a major focus on lupus research in its on-campus program in Bethesda, Md. NIAMS also funds lupus researchers across the nation, including a Specialized Center of Research at the University of Virginia School of Medicine in Charlottesville devoted specifically to lupus research
Email: NIAMSinfo@mail.nih.gov
Website: www.niams.nih.gov
American Autoimmune Related Diseases Association, Inc., (ADA) The ADA is a national nonprofit voluntary health organization dedicated to bringing a national focus to autoimmunity as a category of disease and promoting collaborative research efforts in order to find better treatments and a cure for all autoimmune diseases.
Website: www.aarda.org
Could I Have Lupus. Could I Have Lupus is a campaign created by The National Women's Health Information Center (NWHIC), a service of the Office on Women's Health (OWH) in the US Department of Health and Human Services (HHS).
Website: www.couldihavelupus.gov
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