Lupus Resources - Organizations
American Academy of Dermatology. P.O. Box 4014, Schaumburg,
IL 60168–4014. Phone: 847–330–0230 or 888–462–DERM (3376) (free of charge) Fax:
847–330–0050. www.aad.org. This national
organization for dermatologists publishes brochures on skin problems such as
acne, as well as those related to lupus. These brochures can be obtained by
calling or writing the academy; it is also available on the organization’s Web
site. The academy can also provide referrals to dermatologists.
American Academy of Orthopaedic Surgeons, P.O. Box 1998, Des Plaines, IL 60017–1998 Phone: 800–824–BONE (2663) (free of charge). www.aaos.org. The academy provides education and practice management services for orthopaedic surgeons and allied health professionals. It also serves as an advocate for improved patient care and informs the public about the science of orthopaedics. The orthopaedist’s scope of practice includes disorders of the body’s bones, joints, ligaments, muscles, and tendons. For a single copy of an AAOS brochure, send a self-addressed stamped envelope to the address above or visit the AAOS Web site.
American College of Rheumatology. 1800 Century Place, Suite 250, Atlanta, GA 30345. (404) 633-3777. acr@rheumatology.org. Website: www.rheumatology.org
American Autoimmune Related Diseases Association, National Office, 22100 Gratiot Avenue, East Detroit, MI 48021. Phone: 800–598–4668 (free of charge). www.aarda.org. The AARDA is dedicated to the eradication of autoimmune diseases and the alleviation of suffering and the socioeconomic impact of autoimmunity through fostering and facilitating collaboration in the areas of education, research, and patient services in an effective, ethical, and efficient manner. The organization provides patient information on lupus and other diseases on its Web site. Additional information can be ordered; a voluntary donation is requested for patient information.
Arthritis Foundation, 1300 West Peachtree St, Atlanta, GA 30309-2904, 404-872-7100 or 800-283-7800. The Arthritis Foundation is the major voluntary organization devoted to supporting research into arthritis and other rheumatic diseases, like lupus, and providing education and other services to people with rheumatic diseases. This foundation publishes free pamphlets on lupus and many other topics. Local chapters provide many services in the community, such as exercise classes, self-help courses, and support groups. There are 72 American chapters which provide research monies, publish literature, and provide patient support. The organization spends about $3 million a year on lupus research. Website: www.arthritis.org.
Centers for Disease Control and Prevention (CDC) 1600 Clifton Road, Atlanta, GA 30333, Phone: 1-800-CDC-INFO (1-800-311-3435).Fax:TDD: 1-888-232-6348. E-mail: cdcinfo@cdc.gov. Web Address: www.cdc.gov/arthritis. This Web site provides information about the diagnosis and treatment of arthritis. It also includes information to help you find a support group for people with arthritis. The site is maintained by the National Center for Infectious Diseases of the Centers for Disease Control and Prevention (CDC).
American Academy of Orthopaedic Surgeons, P.O. Box 1998, Des Plaines, IL 60017–1998 Phone: 800–824–BONE (2663) (free of charge). www.aaos.org. The academy provides education and practice management services for orthopaedic surgeons and allied health professionals. It also serves as an advocate for improved patient care and informs the public about the science of orthopaedics. The orthopaedist’s scope of practice includes disorders of the body’s bones, joints, ligaments, muscles, and tendons. For a single copy of an AAOS brochure, send a self-addressed stamped envelope to the address above or visit the AAOS Web site.
American College of Rheumatology. 1800 Century Place, Suite 250, Atlanta, GA 30345. (404) 633-3777. acr@rheumatology.org. Website: www.rheumatology.org
American Autoimmune Related Diseases Association, National Office, 22100 Gratiot Avenue, East Detroit, MI 48021. Phone: 800–598–4668 (free of charge). www.aarda.org. The AARDA is dedicated to the eradication of autoimmune diseases and the alleviation of suffering and the socioeconomic impact of autoimmunity through fostering and facilitating collaboration in the areas of education, research, and patient services in an effective, ethical, and efficient manner. The organization provides patient information on lupus and other diseases on its Web site. Additional information can be ordered; a voluntary donation is requested for patient information.
Arthritis Foundation, 1300 West Peachtree St, Atlanta, GA 30309-2904, 404-872-7100 or 800-283-7800. The Arthritis Foundation is the major voluntary organization devoted to supporting research into arthritis and other rheumatic diseases, like lupus, and providing education and other services to people with rheumatic diseases. This foundation publishes free pamphlets on lupus and many other topics. Local chapters provide many services in the community, such as exercise classes, self-help courses, and support groups. There are 72 American chapters which provide research monies, publish literature, and provide patient support. The organization spends about $3 million a year on lupus research. Website: www.arthritis.org.
Centers for Disease Control and Prevention (CDC) 1600 Clifton Road, Atlanta, GA 30333, Phone: 1-800-CDC-INFO (1-800-311-3435).Fax:TDD: 1-888-232-6348. E-mail: cdcinfo@cdc.gov. Web Address: www.cdc.gov/arthritis. This Web site provides information about the diagnosis and treatment of arthritis. It also includes information to help you find a support group for people with arthritis. The site is maintained by the National Center for Infectious Diseases of the Centers for Disease Control and Prevention (CDC).
Department of Health and Human Services (DHHS) On-line Resources
The following Web sites can help you find additional sources of information about lupus: HealthFinder. The DHHS site for consumer health information. www.HealthFinder.gov. Combined Health Information Database. The NIH and the Centers for Disease Control and Prevention database of sources for consumer health information: http://chid.nih.gov
S.L.E. Lupus Foundation, 330 Seventh Avenue, Suite 1701, New York, NY 10001, 212-685-4118, www.LupusNY.org
Lupus Research Institute, 330 Seventh Avenue, Suite 1701, New York, NY 10001, 212-812-9881, www.LupusResearchInstitute.org
National Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse (AMS Information Clearinghouse), Box AMS, 9000 Rockville Pike, Bethesda, Maryland, 20892, 301-495-4484. Resource services for rheumatic disease information including lupus.
National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK). National Diabetes Information Clearinghouse (NDIC), 1 Information Way, Bethesda, MD 20892–3560. Phone: 301–654–3327 or 800–860–8747 (free of charge). E-mail: ndic@info.niddk.nih.gov. www.niddk.nih.gov
National Institute of Neurological Disorders and Stroke. Office of Communication and Public Liaison, P.O. Box 5801, Bethesda, MD 20824. Phone: 301–496–5751 or 800–352–9424 (free of charge). E-mail: braininfo@ninds.nih.gov. www.ninds.nih.gov.
Fibromyalgia Network, PO Box 31750, Tucson, AZ 85751-1750, Tel: 520-29C
5508 or 800-853-2929. Supports research through the American Fibromyalgia
Syndrome Association.
Scleroderma Foundation, 89 Newbury St., Danvers, MA 01923, Tel: 978-750-4499. Website: www.scleroderma.com
Sjogren's Syndrome Foundation, 335 No. Broadway, Jericho, NY 11753, Tel:
516-933-6365 or 800-395-6772. Website: www.sjogrens.com
The following Web sites can help you find additional sources of information about lupus: HealthFinder. The DHHS site for consumer health information. www.HealthFinder.gov. Combined Health Information Database. The NIH and the Centers for Disease Control and Prevention database of sources for consumer health information: http://chid.nih.gov
S.L.E. Lupus Foundation, 330 Seventh Avenue, Suite 1701, New York, NY 10001, 212-685-4118, www.LupusNY.org
Lupus Research Institute, 330 Seventh Avenue, Suite 1701, New York, NY 10001, 212-812-9881, www.LupusResearchInstitute.org
National Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse (AMS Information Clearinghouse), Box AMS, 9000 Rockville Pike, Bethesda, Maryland, 20892, 301-495-4484. Resource services for rheumatic disease information including lupus.
National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK). National Diabetes Information Clearinghouse (NDIC), 1 Information Way, Bethesda, MD 20892–3560. Phone: 301–654–3327 or 800–860–8747 (free of charge). E-mail: ndic@info.niddk.nih.gov. www.niddk.nih.gov
National Institute of Neurological Disorders and Stroke. Office of Communication and Public Liaison, P.O. Box 5801, Bethesda, MD 20824. Phone: 301–496–5751 or 800–352–9424 (free of charge). E-mail: braininfo@ninds.nih.gov. www.ninds.nih.gov.
Fibromyalgia Network, PO Box 31750, Tucson, AZ 85751-1750, Tel: 520-29C
5508 or 800-853-2929. Supports research through the American Fibromyalgia
Syndrome Association.
Scleroderma Foundation, 89 Newbury St., Danvers, MA 01923, Tel: 978-750-4499. Website: www.scleroderma.com
Sjogren's Syndrome Foundation, 335 No. Broadway, Jericho, NY 11753, Tel:
516-933-6365 or 800-395-6772. Website: www.sjogrens.com
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